May 27th update

Catch up post #2.  For any readers who are not DS friends.  Copied from my DS journal, May 27, 2012.

The funeral for my mother-in-law went well. While we miss her we all are glad she is in a better place and is no longer encumbered in her worn out body. She left us quite a legacy to follow.

My son is doing better in some ways - worse in other ways. We are doing what we can to help and turning the rest over to God. They found out that the combination of drugs they put him on was causing the panic attacks and, surprisingly, also a lot of the painful muscle spasms. So pain wise - he is doing better, but he still can not return to work (he does heavy manual labor for a living) so financially things are really bad for him. He seems to be one of those kids that wears a sign on his back - "hurt me please - my life is not sucky enough yet". The worries never go away with our kids do they! They just seem to multiply as their families grow.

As for me - as you can guess - all of this has hyped my symptoms a bit. The shaking makes me feel like a nervous wreck even when I am calm. I have been off kilter with my exercise schedule and of course eating poorly (a lot of emotional sugar loaded junk eating). This week of getting back on a sort of reg. schedule is helping calm the tremors down a bit. I have also been having more foot cramps lately so I am hoping getting back on track with the exercise will help with those too. I had one on my right side last week, which is a first. (it is not progressing, it is not progressing, it is not....) If I say it over and over again, does it make it true??? Well - it works for politicians!!!

I have another PPMI study appointment this week. My husband, who was gently persuaded to also be a guinea pig, and I will be having back to back lumbar punctures. Doesn't that sound romantic?? lol At our age - it is!!!! With this procedure I will meet the goal of staying med free for the PPMI tests wanted. So after this appointment I will begin to travel the meds road. I am so excited! NOT!!!!!!!! Actually, I am dreading this phase and if I could figure out a way to not do meds - I would go that route instead. But I see no alternatives at this point. (sighs and deep breaths)   Not to worry though - my doctor has decided to help me delay my anxiousness on the med situation. I can not get an appointment with him and am being told they are not opening his schedule again until sometime in July and they will call me when they open it up. HHMMPPff... wonder what would happen if I really needed to see him??? Oh well -  I will live with the symptoms as is for awhile longer and quit worrying about the meds road until then.